Yep, I am finally doing it! The 30 Day Squat Challenge

Okay, I have finally given in!  I am doing the 30 Day Squat Challenge.  You know the one that made its way around social media last spring......Hey! Better late than never!  When this started going around Facebook last spring, I had numerous Facebook contacts who were participating and offering each other encouragement and accountability.  I wanted to try it then but was pretty sure that I could not keep up with the progressive nature of it at that time.  Sticking to one of my New Year's Resolutions however, I did do something.  I quietly and without any fan-fair began doing a few squats every day.  I think I actually started with five.  Over the summer I worked my way up to 25 every morning.  Now I can do those 25 without even blinking an eye so I decided it was time to start the actual challenge.   Exercise is so important to people with Multiple Sclerosis and aside from the physical limitations that may prevent us from performing certain exercises we also suffer from just plain lack of motivation!  Even though the "rush" of doing this challenge seems to have passed in my social media circles, hopefully there are a few of you out there that can keep me accountable and help me stick with it.  I am proud of myself for consistently working up to the point where I feel like I can even attempt it!  Anyone want to do it with me?

New Year's Resolution - Exercise More!

One of my New Year's Resolutions is to EXERCISE MORE!

This really should not be a difficult one for me to accomplish because pretty much if I exercise at all I will be doing more than I have been recently!

I have never been one that really enjoys "organized exercise".  I prefer to play a sport where I get exercise but am having fun, but also reaping the health benefits and I don't realize it!  :)

Now, while I am at a Soccer field for what seems like just about every waking moment, I get little to no health benefit from being a spectator.   To accomplish my goal I must actually move!

I was recently at a dinner where the topic was the benefit of exercise to a patient with MS.  With limitations on what we can do physically, sometimes it is a challenge to come up with an exercise routine that is both feasible and fun.

Initially after my diagnosis, once I was able to walk better, I enrolled in a Zumba class.  It sounded ambitious to me at the time but my daughter encouraged me and went with me while she was home on a school break.  I was not able to do all of the moves (especially at first).  However, as time went on, it helped me tremendously in regaining not only my strength, but balance and stamina as well.

As summer wore on, it became consistently too hot at the gym where the Zumba class was held and the risks outweighed the benefits, so I switched to water aerobics.  I loved it and was able to maintain a more consistent body temperature while exercising.  Water aerobics lasted through September (I think) and then with the rush of school starting and getting back into that routine any semblance of an exercise schedule for myself got left by the wayside!

My goal is to find several activities that I can do several times a week so that I neither get bored, nor physically strained.

My list for now consists of the following:

• Walking in the neighborhood (weather permitting).
• Zumba (at home on DVD, with my own thermostat!)
• Water aerobics when it resumes for the year.

What are you doing?

Happy New Year! Are you making any changes this year?

New Year's is always a time for new beginnings!  My resolutions for this year are to:

• Enjoy more time with my kids and husband.

• Get more exercise.

• Improve my diet.

• Lose 5 pounds.

• Manage my time better.

• Manage my finances better.

Wish me luck and I wish you luck in all that you wish to accomplish!

Happy 2013!

Cool As A Cucumber!

Yes, yes! I have ordered and received two shirts that are made with a relatively new material that activates a cooling sensation when moistened. I am super excited to try them!

In the meantime however I have discovered a wonderful little "evaporation towel" called Chilly Pad by Frogg Toggs. It is pretty terrific and as a matter of fact I am using one right this minute!

Today we are attending a soccer event. I didn't wear one of my new cooling shirts because this one is at an indoor facility. As an afterthought though, I did grab my new Chilly Pad as we walked out the door this morning. I am so glad that I did!

As the day has worn on and the hot Texas sun has beat down on this place it has warmed up inside. I have my Chilly Pad draped across the back of my chair and it is perfect for keeping me cool while watching the kids work on their skills!

I discovered my exciting new find based on a tip from a new acquaintance I met at a recent MS program hosted by Shared Solutions. She had one and passed it around for all to feel. She uses hers draped across the back of her wheelchair to help her keep cool.

I found mine at Wal-Mart in the hunting section.  I couldn't find it on my own but when I asked the young lady working in the department, she took me right to them. 

They are also available online on a number of sites or

 you can get one by clicking here -->   

I definitely recommend them!

MS Family Discovery Camp at Camp For All is drawing near!

I got a notice on Facebook a couple of weeks ago that MS Family Discovery Camp registration would soon be taking place.  I am super excited to see some of the folks we met last year and make new friends as well!  Last year was our first year to go and it was a pretty fun, educational and enlightening experience for our entire family.  Yes even the teenagers enjoyed themselves! 

You can read more about our experience here!

Hot Days and Cooling.....Vests, Tops, Tanks?! What's A Girl To Do?

The dog days of summer are upon us.  I have always been a summertime girl.  I like the outdoors, water sports and sunshine; and in the past, yes, even the heat.  Now, not so much and August heat in Texas, even in my better days, could prove rough.  

Heat intolerance plagues many of us with Multiple Sclerosis.  I was not really sure that I was susceptible to this particular symptom until pretty recently.  Last year’s excessive heat and drought in our area kept me, and everyone else with a choice, in the nice comfy air conditioning (and possibly in denial) more than I realized. 

This year when I have ventured out I have noticed the symptoms set in that I have never recognized before.  Symptoms that I had however experienced with hot tubs (yes, I have avoided those for years – I like the bubbles but leave OFF the heat please!). 

• I become physically drained or “heavy”.

• I become dizzy

• My vision becomes “narrowed”.

• I feel just overall yucky! 

Thankfully these symptoms abate after I am able to cool off and return to a normal temperature!

So my goal now is to figure out how to deal with the heat without having to become a hermit and hide inside during what formerly was my favorite time of the year.  One thing I have heard of was wearing a cooling vest to keep your core body temperature down while outside.  Last night I Googled “cooling vest” and received a long list of results featuring a myriad of colors in the latest in what I am have begun calling “road crew construction fashion”! 

Now, I am not really a slave to fashion but I am hunting for something a little more feminine that I can walk around downtown on The Square and peruse the windows in the antique stores without feeling like I am going to fall out.  After what seems like hours of searching online I have found the following few options that I am going to give a try.    

This one for sure
and one of these too only in women's, of course.......
and while I'm at it maybe a dress or two......   :)

They have special material that produces a cooling effect when moistened (aka you sweat in them).   They don’t promise the same results as the cooling vests but they do seem like a viable option for most of what I am looking for. 

I will let you know how they work and if you have any suggestions or have already tried some of them please let me know! 

You mean not every health issue I have is related to MS?

When I start to feel "not right", I automatically assume that I am experiencing a relapse or an exacerbation of existing symptoms.  But guess what?  Sometimes I have the flu or a cold or low blood sugar, or high blood pressure.  Or better yet, (and the one I like the least) is I am just aging!?  

The truth is that people with MS have just as much likelihood of catching the same bugs that everyone else does.  They also have the same odds of having coronary artery disease, diabetes, cancer, etc. as the general population.  

So what does that mean?  It means that MS is not responsible for everything that goes wrong with your health!  Here is what you need to do: 

• If you have a new symptom, no matter what it may be, let your doctor know.  
• Maintain a good relationship with not only your neurologist, but also your General Practitioner.  Visit them when you are well so they have a baseline for your overall health.  
• Get yearly health screenings just like you should, including physicals and blood work.  
• If you are a woman don't forget (or avoid) your annual well woman exam.  

Keeping a handle on your overall general health will be beneficial in your maintenance of your Multiple Sclerosis as well.

"Am I going to die?" well yes, but probably not today....

Being newly diagnosed with Multiple Sclerosis is scary business.  

I remember the day I got the diagnosis.  It was heart breaking.  I thought my life was over.  Now that I have been on this ride for more than a year I realize that it is not over, I have been given a new life.  In the midst of all of the uncertainty with MS, I realized that I do have control over some things and that is what I can do to keep myself as healthy as possible. 

One of the first things I hear when I talk to people who are newly diagnosed is “I’m not ready to die!”  Well, the good news is, most likely that really does not need to be an immediate concern.  The fact is while we are more likely to suffer from disability in some form or another; our average life span is quite in line with the national average.  MOST people diagnosed do not die from MS but other causes, just like everyone else.  With the treatment options that have become available in the last two decades life expectancy for MS patients has steadily increased over the last 50 years and the progression of disability is able to be slowed in many cases with consistent treatment and modification of lifestyle. 

Well what does that mean - Modification of lifestyle?  It means pretty much what every doctor tells everyone.  It means you should eat more healthily, get as much exercise as you can tolerate and avoid stress.  Oh and you should take your medication regularly, not just when you feel bad or cannot function properly.  MS is described as disease with symptoms that come and go so just because you cannot see or feel an attack does not mean the disease is not progressing.  It is possible to have progression without outwardly visible signs. 

So, if you are “not ready to die!”  Listen to your doctor!   Take control of what you can in this crazy ride.  

• ·         Make healthy menu choices; avoid high fat, high sugar foods.  

• ·         Exercise – Keep your body in the best physical shape possible.  The blood flow is good for the brain and memory retention and the physical benefits are paramount when you have a relapse.

• ·        Avoid stress – I know this one can be the most difficult.  Most people don’t look for stress, it finds them.  You have to learn to walk away, say no, stop and smell the roses and enjoy the moments you have.  All of that sounds so easy (and like a bunch of cliches thrown together) but it is essential for your health.  Take it slow, eliminate one stressful thing from your life, adjust and then do another.  It will pay off in the long run!

• ·         Take your medications regularly – If you have vision problems, do you stop wearing your glasses/contacts because you can see well when you have them on?  No!  They are working so you keep wearing them!   So why would you stop taking your medicine if you feel better and fewer lesions/plaques are forming!?  It is doing its job!  Let it work!

So yes, it is a scary, crazy ride but you have  the ability to take control of some things along the way to make it a better than expected trip!