tag:blogger.com,1999:blog-950312154817108141.comments2022-10-28T02:55:24.455-05:00My Own MS JourneyUnknownnoreply@blogger.comBlogger55125tag:blogger.com,1999:blog-950312154817108141.post-78159910155104733282013-10-11T15:02:59.572-05:002013-10-11T15:02:59.572-05:00Lezlie, I am sorry it has taken me so long to get ...Lezlie, I am sorry it has taken me so long to get back to you! Hopefully by now some of your site reactions have subsided. Did the manual injection help any for you? I'm not sure about the dog bite relationship to the site injections. I certainly wouldn't rule it out as something that might have added to them. My reactions and pretty much everyone elses I know came on without anything like that occurring first. However, I do know that when I got my flu shot last year, it just happened to be in the same arm as my most recent copaxone shot too and I had a terrible reaction then, must worse than ever before. I had pain and weakness in that arm for over a month on top of my original "normal" site reactions. <br />Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-60612301693575375762013-10-11T14:58:09.804-05:002013-10-11T14:58:09.804-05:00Cam - I sent you a message on Google +. I'm n...Cam - I sent you a message on Google +. I'm not real familiar with how it works so hopefully you will get it! <br />Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-21388948526263326902013-05-06T13:32:19.729-05:002013-05-06T13:32:19.729-05:00I'm only in my third week of using Copaxone an...I'm only in my third week of using Copaxone and the itching has already started. It is pretty severe but Benadryl seems to help for a time. Thanks for sharing your tips; I will try a manual injection tonight. That needle is so fine, it's hard to imagine that much medication on the surface could be problematic. This is probably irrelevant, but I found it interesting that the itching didn't start until I was bitten by a dog on my right arm and had to have a tetanus shot. THAT site was the first to swell, redden and itch like mad. Every site I've used since has started itching within 8 hours of the injection. Maddening!Lezlienoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-56260296924318894532013-04-11T10:24:46.979-05:002013-04-11T10:24:46.979-05:00Thanks for the comment "climbingdownhill"...Thanks for the comment "climbingdownhill". I love mine and it is super portable. I keep it in my trunk just in case I find myself in need of it. Even if it is dry you can usually find a water fountain or bottle of water to moisten it, squeeze it out and then its good to go for several hours!Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-66382028536804770482013-04-10T05:58:02.635-05:002013-04-10T05:58:02.635-05:00Never heard of a chilly pad. Thanks for sharing th...Never heard of a chilly pad. Thanks for sharing the information. Up until now, I've used a squeeze breeze, but a chilly pad would be more portable.<br />Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-3888689814132678732013-04-05T00:39:04.827-05:002013-04-05T00:39:04.827-05:00Excercise IS important! It's good for your hea...Excercise IS important! It's good for your health and well being; as well as managing your MS. I really believe that excercise and pushing yourself is the best way to go with MS management. :) <br /><br />I like your list of excercises that you have planned out. Marcus (he has MS) is currently working out by lifting weights and doing a lot of core exercises. He has build up so much muscle that he lost during his relapse (nausea, lack of movement, etc). He has considered water aerobics too, but hasn't tried it yet. <br /><br />I'm so proud of him. You should be proud of yourself too for wanting to exercise!Ihttps://www.blogger.com/profile/08369015564048680169noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-51924444944680764742013-03-18T11:32:29.805-05:002013-03-18T11:32:29.805-05:00Adrian, thank you for your comment. I hate that y...Adrian, thank you for your comment. I hate that you are going through this crazy itch so soon. I am pretty sure I had more time than you before it began on a regular basis. I have just recently began doing the injections without the auto-injector. I have found that it has made a world of difference in my site reactions. The itchiness and lumps are much better and the bruising is almost nonexistent now. It took me awhile to work up my courage to be able to give myself a shot without the auto-injector....it just seemed easier mentally to just push the button and be done with it. I also seem to have the fewest reactions on my stomach. I hope you can find a way to reduce your reactions. For the itch, oral medications (Benadryl, Zyrtec, etc.) did not help me as much as hydro-cortisone cream applied directly to the sites. Unfortunately the relief was short-lived when the itch was at its worst! I understand you have limited areas you can inject, but please remember to rotate them as often as possible or you begin to run into other problems. Good luck, and keep remembering the benefits out weigh the irritation! :)Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-21875695460457932772013-03-18T05:40:51.797-05:002013-03-18T05:40:51.797-05:00I'm going through what you've said word fo...I'm going through what you've said word for word. I think I've been on my regime for about three weeks, +or- a few days?! And yeah it itches like crazy, but as you've pointed out, I've been using the red cap puller and I can see a little drop of liquid right at the tip of the needle. I hate anything cold touching me, just don't do well with ice packs, lot's of DDD 7 levels...., I've got tattoos over most of my body, but there's places I'm injecting, (not many) where the sites are not truly tattooed, but there's areas of skin where there's no ink but it is close to where there is ink in the sub-Q and they are NOT doing well, as I'm just about covered from head to toe... these sites seem to be raised/and itching a LOT more than the other. I think I'll stay away from them...my stomach really doesn't itch except for the bottom row of sites, my doc said I could use three rows on my belly, 6'5" and short legs so I'm all upper body. It does say not to inject anywhere there's a tattoo which leaves out all but three places for me to inject. I'm going to try a Benadryl today. Some days it's only one site that itches, others it's all, or a couple. My lower stomach line bruised like crazy, but this is pretty easy stuff to deal with. I'm very grateful that there's been all of the advances and treatment options for this disease. Anonymoushttps://www.blogger.com/profile/02500856856114537550noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-19213658590102944272013-01-30T21:27:33.127-06:002013-01-30T21:27:33.127-06:00Hi there - I am a writer with Everydayhealth.com (...Hi there - I am a writer with Everydayhealth.com (6 million readers monthly!) working on an article about MS - before and after diagnosis. I was hoping we could find a time to talk or email in the next few days about your experience of MS diagnosis. My email is madeline.vann@gmail.comMaddiehttps://www.blogger.com/profile/04134507984253032157noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-29335905293605860852013-01-09T11:20:46.703-06:002013-01-09T11:20:46.703-06:00Why on earth would you want to lose any weight?? ...Why on earth would you want to lose any weight?? You are already as slim as they come!! Just take good care of yourself, and be healthy about doing it! Love, SandyAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-73768623386525257432012-12-10T12:17:06.486-06:002012-12-10T12:17:06.486-06:00Thanks Lindsay! I clicked over to your blog. I l...Thanks Lindsay! I clicked over to your blog. I love it! Good luck on the steroids, I hope that it helps your vision quickly! I have had no serious vision issues, but I do credit a round of IV steroids followed by tapering oral steroids for helping me regain (or at least speeding up the progress) the majority of my walking ability. Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-85508633901269433972012-12-10T00:45:51.135-06:002012-12-10T00:45:51.135-06:00I was just diagnosed....so glad I found your page ...I was just diagnosed....so glad I found your page - some good info in just browsing. :-) Thanks!Lindsay Y.https://www.blogger.com/profile/17547569137449842290noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-88441076273783622272012-11-08T08:07:57.103-06:002012-11-08T08:07:57.103-06:00MSAA, thank you for the additional resource! MSAA, thank you for the additional resource! Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-59061977680866715562012-11-08T07:33:40.637-06:002012-11-08T07:33:40.637-06:00Hello,
I came across this site while searching on ...Hello,<br />I came across this site while searching on Google. <br /><br />First, let me introduce you to the organization. The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization dedicated to enriching the quality of life for everyone affected by multiple sclerosis (MS). MSAA provides ongoing support and direct services to individuals with MS and the people close to them. MSAA provides free, vital programs and services, such as:<br />Toll-free Helpline (800-532-7667), Equipment Distribution program, Cooling program, Educational Events, MRI programs, award-winning publications including our magazine The Motivator, MSi educational web series available at our website, our new S.E.A.C.H program (helping patients search for the most appropriate MS treatments for them), Lending Library, and our new My MS Manager program (a free mobile phone app which offers individuals a convenient and effective tool to manage the ever-changing course of their MS).<br /><br />Please visit www.MSassociation.org for more information.MSAAhttp://www.msassociation.orgnoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-57257909204284536992012-10-25T13:12:09.635-05:002012-10-25T13:12:09.635-05:00I think they are going to work. I really didn'...I think they are going to work. I really didn't get a chance to test them out as well as I would have liked because I got them as summer was winding down. I could tell a slight difference in them when I "glistened" but never really broke a sweat which is really when I think the cooling sensation gets revved up!Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-35862660132043780982012-10-25T13:08:03.401-05:002012-10-25T13:08:03.401-05:00:) So if you see me with a scarf tied tightly arou...:) So if you see me with a scarf tied tightly around my head this weekend you know why! Haha, I seriously may be a mummy for Halloween! Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-62993345098553966362012-10-25T13:05:18.527-05:002012-10-25T13:05:18.527-05:00How did the clothes work out for you?How did the clothes work out for you?Charitynoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-86697838866663542042012-10-25T13:03:11.355-05:002012-10-25T13:03:11.355-05:00The tight jeans makes sense. I've found with ...The tight jeans makes sense. I've found with Rowan's sensory issues that sometimes doing the opposite of what you think, actually sort of overloads the senses and jumpstarts everything to work right. Charitynoreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-86273281712902420562012-08-03T09:35:33.811-05:002012-08-03T09:35:33.811-05:00That does seem to be the way it is with MS doesn&#...That does seem to be the way it is with MS doesn't it? - always keeps you guessing! :)Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-82739174591322351322012-08-03T08:37:33.007-05:002012-08-03T08:37:33.007-05:00:-)
I used to blame the MS every time something o...:-)<br /><br />I used to blame the MS every time something odd/weird started happening to me, LOL...but u're so right, it could be something else very easily. One time i DIDN'T blame the MS, i thought that it was normal and guess what - it sure was the MS. LOL- can't win for losing.Anonymoushttps://www.blogger.com/profile/01050970928405965804noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-14876122810367896842012-08-02T13:28:58.576-05:002012-08-02T13:28:58.576-05:00Thank you!Thank you!Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-53112424306525395722012-08-02T13:28:44.532-05:002012-08-02T13:28:44.532-05:00thank you!thank you!Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-44668145487586843222012-08-02T13:28:19.778-05:002012-08-02T13:28:19.778-05:00I can laugh about it now but I am glad you were sm...I can laugh about it now but I am glad you were smart enough not to laugh then! :) Love you too!Anonymoushttps://www.blogger.com/profile/07446863450374070709noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-87840036724723763312012-08-01T22:42:06.793-05:002012-08-01T22:42:06.793-05:00I know this is not a laughing matter when you are ...I know this is not a laughing matter when you are going through it but I like the way you write about it. It makes me laugh:-) I love you.Randyhttps://www.blogger.com/profile/10559145721031472617noreply@blogger.comtag:blogger.com,1999:blog-950312154817108141.post-59211439792013543592012-08-01T00:52:29.182-05:002012-08-01T00:52:29.182-05:00Nice blog post...Like your experience ..Its good t...Nice blog post...Like your experience ..Its good to hear-from your side that you have get ride from this itching..<br /><br /><a href="http://www.indswiftltd.com/cardia_swift_division.php" rel="nofollow">ATSTAT 10 (SS) 10X10</a>Dermatology Drugshttp://www.indswiftltd.com/q_den_division.phpnoreply@blogger.com