For someone who is now plagued with the additional questions of: Am I going to get too tired? Are my legs going to work the whole time? Will I be able to make a decision or retrieve the correct words? the fact that I am more willing to step outside "my box" is quite amazing to me.
My daughter invited me on a trip over the summer. It was a spur of the moment trip. That is something pretty unusual for both of us. We are both planners. I wonder where she gets it from? We both, although I am sure I am more inclined to do it, usually have everything mapped out well in advance. We do spontaneous things, but we plan for them. :)
I wanted to talk myself out of it. There are always excuses, right.
- How can I justify the expense?
- I'll be too tired to be any fun.
- I can't leave the other kids because school is about to start. I have supplies and clothes to shop for.
- What will they eat?
So off we set to the airport.
First obstacle: Pre-filled Copaxone syringes on a plane. I packed them in my carry-on because I didn't want them to somehow get lost in "luggage land" without me. I can't run down to the drug store and pick up a few extra. They come from a specialty pharmacy, are shipped overnight via
refrigerated carrier; and they cost a bazillion dollars which insurance would not cover to replace. I was anticipating trouble but was pleasantly surprised. As I waited with my shoes off to head into the scanner, I leaned over to the lady screening the bags, got her attention and gently tapped my suitcase and quietly said "I have medication in syringes in my bag." She smiled and asked if there was any type of gel pack with them. I replied that there was indeed a refrigerated pack to keep them cool (I hadn't even thought about that being an issue). She shook her head and motioned me on through. After I went through, she smiled and said, "Thank you for letting me know." That was it, no problems whatsoever. We put our shoes on, grabbed our bags and headed to the plane.
One obstacle that wasn't an obstacle down.
So within one week of mentioning it to me, my daughter and I both boarded a plane from Dallas to Los Angeles. We did have hotel reservations but that was it. We had no plan for what we were going to do while there and we had no reservation for a rental car or ride. She had mentioned that she had done some research and we should use public transportation while we were there. I laughed at her, literally. I know people use public transportation but we don't generally. We live in rural Texas. Other than Greyhound there is no real public transportation. She and I both have used buses and trains in Europe, but that was pre MS. Pre having to be more prepared (in my mind anyway) for obstacles.
We made it safely to our destination and bought ourselves a Metro Tap Card for $20.00 each and we rode the Metro Rail and buses all over Los Angeles! Not only did I overcome self imposed obstacles but she overcame her fear of needles by very carefully (and after much encouragement and coaxing) administering my shot on two nights while we were on our trip. It was a time for us to enjoy each other and both experience and see things we had never before. What an awesome adventure with my daughter that I would have missed if I had worried about everything and talked myself out of going because of what "could" have happened.